Arrhythmia Alliance E-Bulletin

“Promoting better understanding, diagnosis, treatment and quality of life for individuals with cardiac arrhythmia”

January 2007

 

Arrhythmia Alliance at No 10(read more)

Reception at No. 10

January 2007

Forthcoming Events

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The A-A was recently invited to host a reception at No 10 Downing Street Cherie Blair greeted our guests and was very interested to learn about the work of the Alliance and its members.

The purpose of the event was to celebrate the success of the charity to date and to highlight the need for on-going sustainable funding so that we can continue to meet our aims and objectives...Read More

To help the Arrhythmia Alliance raise much-needed funds, simply make www.everyclick.com your home page and choose A-A as your nominated charity. Then every time you use Everyclick as a search engine, you’ll be raising money for A-A without it costing you a penny (read how it works)

Welcome to our e-bulletin where you can read about the latest research into heart disease, useful heart information sources, dates for your diary and more.

Interesting Links

If you have any links, suggestions for stories to cover in next month’s e-bulletin or know of any forthcoming events, please email webmaster@arrhythmiaalliance.org.uk

Registered Charity No. 1107496

Tel: 01789 450787

Email: info@arrhythmialliance.org.uk

Address:

PO BOX 3697, Stratford-Upon-Avon, Warwickshire, CV37 8YL

Northern Ireland link to NICE is launched

Remember, if members would like to communicate with other sufferers, offer support and exchange information they can do so by joining our moderated A-A Community Forum.  Just click here and get talking. Click on "Register" to apply.

ICD Support Groups

If you run, attend or know of an ICD Patient Support Group in your area would you please e mail contact details to info@arrhythmiaallaince.org.uk  The Arrhythmia Alliance, in conjunction with the DoH NHRMD Taskforce, is working on producing guidelines to establish Information & Support Groups and to provide training and material to healthcare professionals and trained volunteers to run a successful group.  If you or anyone you know are interested in receiving further information please do not hesitate to contact us.

Its Good to Talk!

Health Minister Paul Goggins today formally launched the Department of Health's link with the National Institute for Health and Clinical Excellence (NICE)...Read More

Attention: Parents & Carers in the UK

We have received a letter from Carers UK which says they are looking to highlight the financial difficulties that carers face and need to know as much as they can about carers' particular financial situations. All personal details will be kept completely confidential to Carers UK. You can find a copy of their questionnaire online at www.carersuk.org and they say please feel free to copy this to other carers. Every statistic gained will be used to campaign for a better financial deal for carers and to press the government to take action.

Call for abstracts for  Heart Failure 2007

The Abstract Submission Service for Heart Failure is now open. You can submit your abstracts here

AA President, Professor A John Camm chats with Cherie Blair

DARE: Drug-induced Arrhythmia Risk Evaluation

STARS: Shine a Light on Education

Member of the Alliance, STARS (Syncope Trust And Reflex anoxic Seizures), is currently establishing an education project. The lack of knowledge and understanding surrounding syncope has meant, for the majority of cases, that the staff and carers responsible for a sufferer do not know how to manage in the event of a syncopal episode...Read More

Cardiac arrhythmia following exposure to drugs is an important public health issue for patients, prescribers and the pharmaceutical industry. The DARE Study aims to recruit patients and controls prospectively in England to examine this phenomenon and evaluate the importance of predisposing epidemiological and genetic factors.

To find out how you can help, please visit  www.dsru.org or phone 023 8040 8615

"Often people feel that CPR is enough, but when you tell them that CPR has a 5% success rate compared with a 50% success rate with an AED they begin to realize the importance of needing an AED." ¹ ²

AEDs increase chances of resuscitation

International Summit on Syncope: State of the Art 2007

The International Summit on Syncope will bring together international experts in the field of syncope to discuss this challenging medical condition...Read More

View Online

Heart Rhythm Congress 2007 is to take place between the 29th—31st October 2007. Find out more and register your interest on the website: www.ukheartrhythm.org.uk

Heart Rhythm Congress 2007

Arrhythmia Awareness Week 2007

Following the huge success of our Awareness week in 2006, we are pleased to announce that a date has been agreed for AAAW07. This will be held during the week of 11^th – 17^th June. If you would like further information please visit www.aaaw.org.uk (which will be updated on a regular basis) and/or contact Carole Ellis… Read More