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Patient meetings

 

Arrhythmia Alliance and our member organisations hold meetings each year specifically for patients. The focus is education; providing opportunities for patients to learn about conditions and treatment options from both each other and medical professionals.


The single biggest patient event each year is Patients Day of the annual Heart Rhythm Congress.

 

Patients Day 2014 took place at The ICC, Broad Street, Birmingham on Sunday 5 October 2014. You can view the agenda for the day and learn more below.

 

10:00 Welcome to A-A Patients Day L. Wood Arrhythmia Alliance
10:05 Diagnostic testing for Long QT, Brugada and WPW M. Cooklin London, UK
10:25 Device implant and lifestyle implications - a practical guide to potential restrictions J. Maloney Sheffield UK
10:45 Questions    
11:00 Break    
11:15 Inappropriate Sinus Tachycardia (IST)
  • Information, explanation, medication and reassurance
K. Rajappan Oxford, UK
11:45 The arrival and availability of revolutionary cardiac devices to help you in 2014
  • New implantable cardiac monitors, retrievable leadless pacemakers, the leadless S-ICD and AliveCor heart monitor
N. Linker Middlesbrough, UK
12:15 Questions    
12:30 Lunch    
Chair: K. Rajappan   Oxford, UK
13:30

Supraventricular Tachycardia Syndrome/AVNRT; Ventricular Tachycardia

  • Standards and treatment models, including ablation
F Osman Coventry UK
13:55

Ectopic beats vs. palpitations

  • What is the difference; are they really harmless? All you need to know
P. B. Lim London, UK
14:15 Questions    
14:30 How do we assess the risk of SCA in athletes - managing the risks of SCA M. Lowe London, UK
15:00 Questions    
15:15 "Can you afford not to have an AED in your school, village, sports club?" T. Lobban Arrhythmia Alliance
15:30 Questions    
15:45 Close    

 

Patients Day 2013 took place at The ICC, Broad Street, Birmingham on Sunday 20 October 2013. You can view the agenda for the day, or alternatively learn more below.

Patients Day 2013 - Know the difference, make a difference: sudden cardiac arrest explained

 

Our 2013 meeting borrowed from our Hearts & Goals campaign with Fabrice Muamba to tackle the UK's biggest killer: sudden cardiac arrest. The afternoon session was devoted to a sudden cardiac arrest survival story and a CPR and AED awareness session with West Midlands Ambulance Service.

 

Patients Day 2012 - The Patient Journey: Symptoms, Diagnosis and Life After

 

 

Thank you to all who attended our third annual Patients Day on Sunday 23 September 2012 at The Birmingham ICC. With over thirty attendees it was our largest yet.

Patients Day 2011

 

“Superbly paced and lively, keeping me engaged throughout” - feedback from Patients Day 2011

 

We are delighted that so many of you were able to join us at this important educational event. For those that attended we hope you enjoyed the presentations and opportunity to meet and chat with other patients and carers.



“Superbly paced and lively, keeping me engaged throughout”
“Up to date information”     “New ideas and views”     “Good variety of topics”
“Sharing experiences”


More than 20 patients and carers attended the first Arrhythmia Alliance National Patients Day this year.


The day was a huge success with presentations given by some of the UK’s leading arrhythmia experts on a range subjects covering everything from travelling with an arrhythmia to placing lifesaving equipment in the community.


Sam Shunmoogum from Milton Keynes ICD Support Group gave a very informative talk on how his Patient Support Group has grown and what he believes his success is based on. It well-known that patients benefit from talking to each other about their condition and find comfort in the fact that they are not alone.


Trudie Lobban, MBE, Founder and Trustee of A-A, outlined the ways in which the charity can support the groups both established and aspiring. For more information on how A-A can help you and your group, please contact caroline@heartrhythmcharity.org.uk.


The morning session broke for lunch following Jean Maloney, Arrhythmia Nurse Specialist’s talk on ‘Getting the most from your Arrhythmia Nurse’. Of all the presentations given, this was one of the most useful, offering advice for patients to use before their appointment, ensuring that they ask the questions that are most important to them.


Lunchtime gave the opportunity to share ideas and experiences alongside speaking to the experts in a relaxed and informal environment.


The afternoon session went very quickly, with subjects such as ‘Living with your Device’ and ‘Exercising with an Arrhythmia’. Both sessions providing invaluable advice and prompted a lively question and answer session.


The day came to a close with another opportunity for members to meet and chat; email addresses and telephone numbers were swapped, ideas for future meetings and publications were evolved and a sense of achievement was widely felt.


The first National Patient Group meeting was over, however the work of A-A to support the Patient Groups is only just beginning so that the ideas from the day are taken forward into 2012.


If you would like any further information of how you could become involved in a Patient Support Group or where your nearest group is, please contact caroline@heartrhythmcharity.org.uk.


Click below for copies of the presentations from the meetings:


Sam Shunmoogum - How a Patient Group Works for you   View
Trudie Lobban MBE - What A-A Can Do for You   View
Jean Maloney - Getting The Most From Your Arrhythmia Nurse   View
Wendy Adams - Your Guide to Successful Fundraising    View
Joe Eden -  Defibrillators in the Community   View
Andreas Wolff - Exercising with an Arrhythmia   View
Sue Jones - Do's and Don'ts of Travelling   View
Jenny Tagney - Living with Devices   View