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About

Arrhythmia Alliance (A-A), The Heart Rhythm Charity®: working together to improve the diagnosis, treatment and quality of life for all those affected by arrhythmias.

 

A-A is a coalition of charities, patient groups, patients, carers, medical groups and allied professionals. Although these groups remain independent, they work together under the A-A umbrella to promote timely and effective diagnosis and treatment of arrhythmias.

 

Please browse the tabs below to learn more about our history and objectives.

 


  • To raise awareness of cardiac arrhythmias
  • To improve diagnosis of cardiac arrhythmias
  • To improve treatment of cardiac arrhythmias
  • To improve quality of life for people with cardiac arrhythmias

  • To bring together member charities, healthcare professionals, commissioners and their allies
  • To advance the concerns and needs of all our members
  • To develop the knowledge and skills base of medical professionals and professions allied to medicine
  • To cultivate multi-centre and multi-disciplinary research
  • To prevent sudden cardiac death in vulnerable groups
  • To promote the value and need for cardiac pacing, implantable defibrillators, catheter ablation and other treatments for arrhythmias
  • To prevent misdiagnosis in patients suffering from arrhythmias and transient loss of consciousness (T-LoC)
  • To assess and quantify unmet need amongst those affected by arrhythmias
  • To promote centres of excellence for arrhythmia diagnosis and treatment
  • To secure better care, leading to a better quality of life, for individuals with arrhythmia


Arrhythmia Alliance was launched in 2004 at the start of the first Arrhythmia Awareness Week in Westminster to raise awareness and highlight the deficiencies in the treatment and care of arrhythmia sufferers. A-A has established a respected relationship with government, and the result is a significant and vital change in government policy. The charity was fundamental in pushing through one of the most essential policy issues to affect cardiology and cardiac patients, resulting in the inclusion of a new Chapter on Arrhythmias and Sudden Cardiac Death in the National Service Framework (NSF). Before lobbying began, the word ‘arrhythmia’ was mentioned only once in the NSF for Coronary Heart Disease; there were no guidelines dictating diagnosis, treatment or care for those with heart rhythm disorders relating to the ‘electrics’ of the heart. A-A is now influencing government with lobbying efforts to make pulse checks a standard procedure for all doctor appointment visits in the UK.

 

A-A continues to strive for access to early diagnosis, appropriate treatment, ongoing patient support and improved quality of life for those affected by cardiac arrhythmias. The unique coalition of charities, organisation, patients, carers, patient groups, medical and health groups and allied professionals provides an integral information and support network for those affected by arrhythmias and it is a springboard for medical discussion and health service improvement. The coalition represents thousands of individual members including patients, doctors, nurses, physiologists, cardiologists and patient carers.

 

Raising awareness is at the forefront of A-A’s activities. We run awareness events throughout the year, culminating in an annual World Heart Rhythm Week and Arrhythmia Awareness Week held every June which encourages old and new supporters to promote awareness of cardiac arrhythmias. ‘Know Your Pulse’ is the overriding theme for Heart Rhythm Week as the pulse is one of the most effective ways of identifying potential arrhythmias, including the irregular heart rhythm induced by Atrial Fibrillation. 1.2 million people suffer from AF in the UK which highlights the importance of the pulse as a tool to identify potential heart arrhythmias.

 

Since 2004, A-A has continued to grow into an international organisation, reaching across the globe to promote awareness of heart rhythm disorders and to make sure that the patient is at the centre of health care. A-A has seen the recent successful establishment of A-A Sweden, A-A Portugal, A-A Czech Republic, A-A Japan and A-A Argentina.

 

The Arrhythmia Alliance’s vision continues to be that “Every person affected by an arrhythmia will receive information, support and rapid access to appropriate treatment as defined by the NSF”. A-A aims to achieve this through advancing awareness, diagnosis, and improved quality of life for all those affected.

 

President

 

Prof A John Camm

 

Medical Director

 

Dr Adam Fitzpatrick

 

Executive Committee

 

  • Mr Pierre Chauvineau
  • Dr Matthew Fay
  • Dr Gerry Kaye
  • Dr Francis Murgatroyd
  • Mr Paul Turner
  • Mrs Trudie Lobban MBE, FRCP (Edin)
  • Dr Nick Linker
  • Prof Richard Schilling
  • Dr Wyn Davies
  • Mrs Angela Griffiths
  • Ms Nicola Meldrum
  • Dr Graham Stuart
  • Dr Sabine Ernst
  • Dr Kim Rajappan
  • Dr Guy Haywood
  • Prof John Morgan
  • Mrs Jenny Tagney
  • Mr Nigel Farrell
  • Mrs Sue Jones

 

Trustees

 

  • Mr Mark Bullock
  • Prof Richard Schilling
  • Mr Nigel Farrell
  • Dr Adam Fitzpatrick
  • Mrs Trudie Lobban MBE, FRCP (Edin)
 

 

Patrons

 

  • W B Beaumont, OBE
  • Rt. Hon Tony Blair
  • Prof Silvia G Priori
  • Prof Hein JJ Wellens
  • HM King Constantine of Greece