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Privacy Statement

 

Arrhythmia Alliance (A-A) is committed to preserving the privacy of its members through all our communications.   

 

The Storing and use of Personal Information

A-A obtains personal contact information when an enquiry is made to the Charity.  An individual enquirer may subsequently become a member of the Charity.  All contact information and correspondence from members and non-members, groups and organisations, is stored securely on file and electronic databases where only internal staff members have access.    


A-A collects information which helps staff to identify enquirers when they make contact.  A-A also monitors and uses information relating to our resources and services.  This includes but is not limited to, the number of website visits, including individual web pages and the resources accessed and downloaded.      


A-A uses information about patients and medical professionals to develop and provide support services, educational and promotional items, relevant to its members.  After you join as a member of Arrhythmia Alliance, you will receive regular paper and electronic communications, advertising our current projects, campaigns and events.  A-A provides its members with information that we feel may be of interest and relevance to you.       


At any point, you are able to unsubscribe to these services by contacting Arrhythmia Alliance.


Every effort is made to ensure that no personal information is exchanged or used without prior consent from the affected individual, group or organisation.  A-A does not pass on or sell lists of contacts from its database.    


When you use our online resources, every effort is made to protect your personal details.  If you donate to the charity, then this is done through a secure PayPal site.  A-A also has a secure medical area on the website which is only accessible with a unique login and password.  You are responsible for keeping this password confidential.


Links to Third Party websites

A-A relies upon the expertise of the Medical Advisory Committee for publishing the best available data. In the first instance, A-A’s preference is to use data that has been directly sourced or approved by one of its committee members. However, information produced by the NHS, NICE, arrhythmia societies and heart rhythm organisations provide a valuable source of national research, data and guidelines.


A list of Reliable Sources of Evidence is available upon request from Arrhythmia Alliance.


The A-A website has links to third party websites and web pages, such as affiliate groups and organisations.  These links are provided for further information, but are only given where consent has been granted and the site link content has been approved by A-A.  Third parties can seek permission and endorsement for links to be provided from the A-A website but the content of external websites and web pages are not usually under the control of Arrhythmia Alliance.  These links are not necessarily permanent and can be advertised to members through various electronic communications.       


If you have any queries regarding our terms and conditions, please do not hesitate to contact Arrhythmia Alliance.


Terms and Conditions


Please note that in the context of these Terms and Conditions, Arrhythmia Alliance means the Charity or A-A, a UK registered charity under number 1107496.  The details of these Terms and Conditions refer to the use of this website and all other websites linked to this site.  By viewing this site you are agreeing to accept these Terms and Conditions.


Policy statement on working with the Medical device and Pharmaceutical Industry


A-A receives funding and donations from a range of sources including community funding, wills and legacies, trusts, Department of Health and industry.


The Charity recognises the importance of working collaboratively with all stakeholders with an interest in cardiac arrhythmias to ensure an understanding and approach by all to the needs of individuals and families affected by heart rhythm disorders.


A-A has received support from a range of medical device and pharmaceutical companies with an interest in arrhythmias and patient care.    


Whilst we acknowledge that support from medical device and pharmaceutical companies is an important resource, we recognise that partnerships with these companies should be approached with caution.  A-A does not permit any company with a direct commercial interest in cardiac arrhythmias to influence its activities.


As a leading resource for support and information for both patients and medical professionals on heart rhythm disorders, we seek to uphold our reputation for integrity, independence, impartiality and transparency in all we do.

 

Disclaimer


Copyright and the use and translation of Arrhythmia Alliance Publications

Arrhythmia Alliance publications in the form of patient booklets, fact sheets, and website are available for use and translation by A-A partners, affiliates and supporters. All A-A materials must be used in accordance to copyright law and partners/affiliates/supporters must agree to its terms and conditions as a legally binding contract. Materials may be used on partner/affiliate/supporters website and/or for distribution to the public.


Where A-A translated materials and other documentation are to be used and distributed, written permission must be obtained from A-A before use. All materials must be reviewed, formatted, and approved by A-A before use. In these cases, partners/affiliates/supporters must submit a draft of the documents to be used and indicate where the partner/affiliate/supporter logo will be placed and any wording associated with it.  Once approved, A-A will return materials with appropriate instructions for use.

 

Copyright and the use of the Arrhythmia Alliance Logo


Affiliates and supporters may use the A-A logo on their website or publications to promote their affiliation and/or association with Arrhythmia Alliance.


Where the A-A logo is to be used in relation to a project, press release, website, or other documentation, written permission must be obtained from A-A before use. In these cases, affiliates and supporters are asked to submit a draft of the documents to be used indicating where the logo will be placed and any wording associated with it.


Once agreed, A-A will supply the logo to the organisation with appropriate instructions for use.