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Patient and carer stories


Without your stories we have no voice...


Can you help?


Share your story and help others who may be awaiting or undergoing treatment for an arrhythmia. Your words can support and reassure patients on the road through treatment as well as those newly diagnosed or caring for someone with an arrhythmia. Many of the people we speak to on our helpline are unsure about what to expect and the treatment options available to them; your words present a real-life account that can be shared to promote awareness and improve understanding of cardiac arrhythmias.


Help us to help others, with your consent we will use your words and your voice as ammunition to promote awareness and lobby for improvements in diagnosis and management of cardiac arrhythmia.


Email your account to info@heartrhythmcharity.org.uk or write to Patient Stories at Arrhythmia Alliance, PO Box 3697, Stratford upon Avon, Warwickshire, CV37 8YL.

Carer stories


Lynne – Supraventricular Tachycardia - Pacemaker »

Samantha - Sudden Cardiac Arrest - ICD »

Christine - Sudden Cardiac Arrest - ICD »

Patient stories, in their own words


Alison - Supraventricular Tachycardia »

Caroline – Supraventricular Tachycardia - Ablation »
Dave – Ventricular Fibrillation - ICD »
David - Sudden Cardiac Arrest - S-ICD »
Frances – Atrial Fibrillation »

Heather - Ventricular Tachycardia - Ablation »
John – Heart Block, Bradycardia – Pacemaker »
James – Wolff Parkinson White Syndrome »
Kathy – Inappropriate Sinus Tachycardia (IST) »
Kirsten – Atrial Fibrillation – Ablation »
Mark – Cardiomyopathy – ICD »
Inga – Supraventricular Tachycardia »
Nicky – Supraventricular Tachycardia – Ablation and Pacemaker »
Naomi – Reflex Syncope (RAS) – ILR and Pacemaker »
Paul – Atrial Fibrillation »

Sophie – AVNRT - Ablation »
Svante – Ventricular Tachycardia - Ablation »

Sue Sudden Cardiac Arrest - ICD »

Lionel - Sudden Cardiac Arrest - AED - ICD »

Joe - Sudden Cardiac Arrest - AED - ICD »

Sue - Wolff Parkinson White sydrome - Ablation »

Danielle - Inappropriate Sinus Tachycardia - Ablation »

Maureen - Atrial fibrillation - Pacemaker »

Sumera - Supraventricular Tachycardia (SVT) »


Please visit the Arrhythmia Alliance Defibs Save Lives website for inspiring sudden cardiac arrest stories

For additional syncope patient stories, please follow this link to the STARS website.

For additional AF patient stories, please follow this link to the AF-A website.