Patient Stories
Without your stories we have no voice...
I would like to thank everyone who has already been willing to share their story. Reading about someone who has been through the same diagnosis, treatment and concerns can provide great reassurance, support and advice for others who are going through the same condition. This is why it is so important for our members to share their stories!
Patient stories are an important way of getting the message out there and this is where we really need your help. Would you be happy to share your story on this website, or perhaps in the next patient newsletter? You may also want to be interviewed by a journalist for the health section of a magazine or newspaper? Whatever you do will help us raise awareness of cardiac arrhythmias.
If you would like to share your story then please email info@heartrhythmcharity.org.uk or write to Heather at Arrhythmia Alliance, PO Box 3697, Stratford upon Avon, Warwickshire, CV37 8YL.
We have a large collection of individual accounts (or Case Studies) from various arrhythmia sufferers and their close friends and family.
Living with an arrhythmia
Ablation
- Len's story
- Mark's story - My Experience of Atrial Fibrillation and Ablation
- Effects of Atrial Fibrillation and what its like to be cured with Ablation - Mr Rufus Dunne
- Effects of Ventricular Tachycardia and what its like to be cured with Ablation - H Cawardine
- My Ablation Experience - Robert Cook
ARVC (Arrhthmogenic Right Ventricular Cardiomyopathy)
Atrial Fibrillation
- Kirsten's story
- Paul's story
- Frances' story
- Ian's story
- James' story
- The Effects of Atrial Fibrillation and what its like being cured by Ablation -Mr Rufus Dunne
- Case Study of an Atrial Fibrillation Arrhythmia Patient
- Out of Retirement and Back on the Beat - Sean’s Story (photo)
CPVT
Hypertrophic Cardiomyopathy
ICD
- Mark's story - Living with an ICD
- Dave's story
- Bruce's story
- Louise's Story
- Mark's Story
- Jim’s Story (photo)
- Peter’s Story
Implantable Loop Recorder
Inappropriate Sinus Tachycardia
Misdiagnosis
- Misdiagnosed with Epilepsy - E Garside’s story
- Misdiagnosed with Epilepsy - D Shepherd’s story
- A misdiagnosis of Atrial Fibrillation
- A Carer’s Story - B Owen
- Ann’s Story - Misdiagnosis of Long QT
Pacemaker
- A Carer’s story - B Owen
- Jim’s Story (photo)
- World’s oldest pacemaker runs marathon (photo)
- John’s Story (photo)
Reflex Anoxic Seizures
- Claire Gallagher’s story
- Helen Finn’s story
- Joel’s Story
- Suzanne Walter’s Story
- RAS - A carer’s story -Margot Suter
- RAS - A carer’s story
Sudden Cardiac Arrest
Sudden Cardiac Death
- Gavin’s story - written by his older brother
- A Parent’s story - Hillary Robinson
- A Parent’s story - Angela Morris
- A Parent’s story - Chris Peil
- Effects of Sudden Death, Heart Failure and ICD - J Quinn
- Our Sudden Cardiac Death Nightmare
Supraventricular Tachycardia
- Georgia's story
- AV Nodal Re-entrant Tachycardia – Caroline’s story
- Effects of Supraventricular Tachycardia and what its like to be cured with Ablation
- Case Study of a Supraventricular Tachycardia patient
- Living with SVT - Nicky's Story
Reflex Syncope (Vasovagal Syncope)
- Case Study of a VasoVasal Syncope Patient - Natalia Anderson
- VasoVasal Syncope: A patient’s story -Julie Fear
Ventricular Tachycardia
- Lee-Ann's story
- Effects of Ventricular Tachycardia and what its like to be cured with Ablation - H Cawardine
- Young IT Consultant Saved by Pioneering Electric Surgery
- Sarah Johnston's Story
Wolff Parkinson White Syndrome