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The Regional Inherited Cardiac Conditions Service in Leeds – Patient Representative

The Inherited Cardiac Conditions service is based at Leeds General Infirmary. It is a specialized genetic and cardiac service covering the Yorkshire region and run by a dedicated multidisciplinary team. The aims of the service are to provide information, risk assessment and appropriate screening for individuals and families who are suffering from or at risk of an inherited cardiac condition.

At present we are looking at ways in which we can improve the service inline with Chapter 8 of the National Service Framework for Cardiac Disease. As part of the service improvement we are forming an Operational Group which will:

  • Meet quarterly to plan and develop service provision and care pathways.
  • Involve representatives from different disciplines involved in running the service.
  • Incorporate patient perspective and experience

We are looking for a Patient Representative to join the Operation Group and help us develop a service which is patient focused. If you have experience of Inherited Cardiac Services, preferably in the Yorkshire area and would be interested in joining this group please contact Jayne Slack on
 0113 3928834
 

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