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Patient Information

The following is a list of bodies, groupings, charities and other entities with a stake in arrhythmia care. This is not an exhaustive list, and it is constantly evolving. If we have excluded anyone, please accept our sincerest apologies, and be assured that as soon as the matter is brought to the attention of the Arrhythmia Alliance , we will quickly act to ensure maximum inclusiveness in our endeavours.

Please Note: While we may recommend sites to you, we CANNOT be held responsible for information that you may collect from these sites.

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18 Week Patient Pathway - www.18weeks.nhs.uk

A
About Heart Rhythm Disorders WebMDt
About Heart Disease - About.com
Age Concern England - www.ageconcern.org.uk
Anticoagulation - www.anticoagulation.org.uk
Anticoagulation Europe (ACE) - www.anticoagulationeurope.org
American Heart Association - www.americanheart.org
Arrhythmia Alliance (A-A) - www.arrhythmiaalliance.org.uk
ArrhythmiA Awareness Week - www.aaaw.org.uk
Arrhythmia Audit - www.arrhythmiaaudit.com
arrhythmia at University of Kentucky - http://ukhealthcare.uky.edu
Arrhythmogenic Right Ventricular Dysplasia - www.arvd.com/
Atrial Fibrillation - www.londonafcentre.com
Atrial Fibrillation: Resources For Patients -www.a-fib.com

B
Backup - ICD Support Group - 0208 7251372
Blood Pressure Association - www.bpassoc.org.uk
British Cardiac Patients Association (BCPA) - www.bcpa.co.uk
British Cardiac Society - www.bcs.com
British Heart Foundation (BHF) - www.bhf.org.uk
British Pacing & Electrophysiology Group (BPEG) - see www.bcs.com
British Vascular Foundation - www.bvf.org.uk

C
Cardiac Risk In The Young ( CRY ) - www.c-r-y.org.uk
Cardiomyopathy Association - www.cardiomyopathy.org
Cardiac Inherited Diseases Group - www.cidg.org
Cardiology-specific safety information from the MHRA - www.mhra.gov.uk/cardiology
Chest, Heart and Stroke Association Scotland - www.chss.org.uk
Children's Heart Federation (CHF) - www.childrens-heart-fed.org.uk
Contact A Family - www.cafamily.org.uk
Coronary Prevention Group (CPG) - www.healthnet.org.uk

D
Department of Health - www.doh.gov.uk
Diabetes UK - www.diabetes.org.uk
Dr Foster - www.drfoster.co.uk
Dysautonomia Youth Network of America ( DYNA ) - www.dynakids.org

E
Education For Health -www.educationforhealth.org.uk
Europace - www.europace.oxfordjournals.org
European Heart Rhythm Association - http://www.escardio.org/bodies/associations/EHRA/

F
Fainting - www.fainting.com
First Responders
Find A Heart Rhythm Specialist: http://www.hrsonline.org/find_heart_rhythm_specialist/default.asp

G
Genetic Interest Group - www.gig.org.uk
Grown Up Congenital Heart Patients Association (GUCH) - www.guch.org.uk
- GUCH stands for Grown-Up Congenital Heart disease. We are a national charity to support patients born with complex heart conditions who have survived into adulthood. Thirty years ago only 15% would have become adults. Thanks to medical advances 80-85% now survive. The increase in the GUCH population will continue but the medical expertise has not kept up with their needs and it has not matched the care they received as infants and children.

H
Heart 4 U - www.heart-4u.com
Health Development Agency - www.hda-online.org.uk
Health Which? - www.which.net
Health Policy Institute, Japan - kanjakai48, kanjakai13
Heart UK - www.heartuk.org.ukHeartline Association - www.heartline.org.uk
Heart Link - www.heartlink-glenfield.org.uk
Heart Disease - http://www.besthealthcareonline.com/index.html
Heart Rhythm UK -http://www.hruk.org.uk
Heart Rhythm Society (formerly NASPE) - www.hrsonline.org
HeartSWell South West - www.heartswell.org.uk
High Blood Pressure Foundation - www.hbpf.org.uk
Hypertrophic Cardiomyopathy Association of America - www.4hcm.org

I
ICD Group of North Staffordshire - www.icdsupport.org.uk
International Association of Patient Organisations (IAPO) - www.patientsorganizations.org
Irish Heart Foundation - www.irishheart.ie

J/K
Jersey Cardiologist -www.jerseycardiologist.com
Kanu Heart Foundation - www.kanuhearfoundation.com

L
Little Hearts Matter - www.lhm.org.uk
Long-Term Medial Alliance - www.lma.org.uk

M
Marfan Association - www.marfan.org.uk
Matthew Krung Foundation - www.matthewkrugfoundation.org
Mayo Clinic - Arrhythmia Diagnosis and Treatment Information - www.mayoclinic.org
Medic Alert - www.medicalert.org.ukMedline Plus- www.Medlineplus.gov

N
NASPE - see Heart Rhythm Society - www.hrsonline.org
The National Council for Palliative Care - http://www.ncpc.org.uk/ is the umbrella organisation for all those who are involved in providing, commissioning and using hospice and palliative care services in England, Wales & Northern Ireland. It promotes the extension and improvement of palliative care services regardless of diagnosis in all health and social care settings and across all sectors to government, national and local policy makers.
National Council for Voluntary Organisations ( NCVO ) - www.ncvo-vol.org.uk
National Heart Forum - www.heartforum.org.uk
NHS Direct ( England , N Ireland & Wales ) - www.nhsdirect.nhs.uk
NHS Hospital list - www.nhs.uk/england/default.aspx
NHS Health Scotland - www.healthscotland.com
National Institute for Clinical Excellence ( NICE ) - www.nice.org.uk
The National Pain Foundation www.NationalPainFoundation.org
National Service Framework for Coronary Heart Disease (NSF - CHD ) - www.dh.gov.uk/consultations
North Gloucestershire ICD Support Group www.icd-gloucestershire.org.uk
North West Regional Electrophysiology Group (NWREPG) - www.nwrepg.com
Northern Ireland Chest, Heart and Stroke Association - www.nichsa.com

O
Online Health Resources - www.onlinehealthresources.com

P
Patient Co - www.Patient.co.uk
POTS Place: A Guide to Postural Orthostatic Tachycardia Syndrome - www.potsplace.com
Primary Care Cardiovascular Society - www.pccs.org.uk
Pulmonary Hypertension Association - www.pha-uk.com

Q/R
Resuscitation Council - www.resus.org.uk
Richard Allan Memorial Fund - http://uk.msnusers.com/RichardAllanMemorialFund/homepage1.msnw

S
Sudden Arrhythmia Death Foundation (SADS Foundation) - www.sads.org
Sudden Arrhythmic Death Syndrome Trust (SADS UK ) - www.sadsuk.org
Sudden Arrhythmic Death Syndrome Trust (SADS CANADA ) - www.sads.ca
Sudden Cardiac Arrest Syndrome - www.suddencardiacarrest.org
Sudden Cardiac Death in the Young www.scdyoung.ie
Scottish Hart - www.scottishhart.com
Scottish Heart and Arterial Disease Risk Prevention (SHARP) - www.heartscotland.org
St John Ambulance - www.sja.org.uk
Stroke Association - www.stroke.org.uk
Sudden Cardiac Arrest Foundation - www.sca-aware.org
Syncope Trust And Reflex anoxic Seizures (STARS) - www.stars.org.uk

T
The Center for Pediatric Hypotension - www.syncope.org
The Centre For Health Information Quality - www.chiq.org
The Cheltenham Syncope Clinic - www.syncope.co.uk
The Children's Heart Institute - www.childrensheartinstitute.orgThe Patients Association - www.patients-association.com
The Heart.- www.theheart.org
The Pediatric Network - www.pediatricnetwork.org
The Transplant Support Network - www.transplantsupportnetwork.org.uk
The UK and Overseas Heart Society - Heart Link Limited - www.heartlink.org.uk

U
UK Interventional Cardiac Electrophysiology Society (UKICES) - www.ukices.org
UK Self Help Groups - www.ukselfhelp.info
UK Heart Rhythm - www.ukheartrhythm.org.uk

V/W
Wessex Children Heart Circle - www.wchc.org.uk
Women's Health - www.womenshealthlondon.org.uk

X/Y/Z