Arrhythmia Alliance E-Bulletin

“Promoting better understanding, diagnosis, treatment and quality of life for individuals with cardiac arrhythmia”

February 2007

Prof. A. John Camm Appointed to Board of Trustees of ACC

February 2007

Forthcoming Events

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Congratulations to Prof A.John Camm, the President of A-A, who has been appointed to the Board of Trustees of  the American College of Cardiology. His  appointment also marks a first for a non North American to be awarded the position. Visit the ACC to find out more

Welcome to our e-bulletin where you can read about the latest research into heart rhythm disorders, useful heart information sources, dates for your diary and more.

If you have any links, suggestions for stories to cover in next month’s e-bulletin, or know of any forthcoming events, please email webmaster@arrhythmiaalliance.org.uk

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Tel: 01789 450787

Email: info@arrhythmialliance.org.uk

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PO BOX 3697, Stratford-Upon-Avon, Warwickshire, CV37 8YL

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Medical News

Arrhythmia in the News

Fast Acting 1st Aiders could save your life

 

Wireless Pulsating heart-pump has potential for implants

How to mend a broken heart

What you should expect if the worst was to happen

 

Brother’s Marathon tribute

Phil Jolly to run the marathon to raise awareness of heart abnormalities that can cause sudden death.

 

Female Predominance Found in Transmission of Long-QT Syndrome

 

Quest for battery-free pacemaker

 

Silent Killers, discussed loudly
Annual exams can detect rare, hidden heart problems

 

Coroners 'to force action' on sudden deaths
Coroners will be able to demand organisations act on their inquest reports into sudden deaths...

Keyhole heart surgery first for UK
cardiologists perform the country's first ever keyhole heart valve replacement operation

 

Innovative CRTs Track Heart Patients Progress from Home

 


Read More News

Arrhythmia Alliance Regional Meetings 2007

The meetings will consider developments that have taken place since the launch of the CHD NSF for arrhythmias and Sudden Cardiac Death. Places are limited, so book soon to avoid disappointment. The date for the Midlands meeting has been changed to the 29th March

South West: 23rd February               London: 6th March                  North-West: 16h March 
North: 23rd March                              South: 26th March                   Midlands: 29th March
More details...

Arrhythmia Awareness Week 2007

Following the huge success of our Awareness Week in 2006, we are pleased to announce that a date has been agreed for AAAW07. This will be held during the week of 11th – 17th June. If you would like further information please visit www.aaaw.org.uk (which will be updated on a regular basis) and/or contact Carole Ellis.

The new Arrhythmia Alliance website is now online and can be visited at www.arrhythmiaalliance.org.uk. This website contains extensive information on arrhythmias and is updated on a regular basis.

New Arrhythmia Alliance website

Remember, if members would like to communicate with other sufferers, offer support and exchange information they can do so by joining our moderated A-A Community Forum.   Click on "Register" to apply.

New A-A online Forum

A-A website Medical Professionals Area

A-A is pleased to announce a new service for our medical professional members in the form of a dedicated area on our A-A website.  As a Medical Professional Member of A-A you will be able to access our secure area via our website and find specifically tailored information and advice relevant to professionals caring for arrhythmia patients. You can also participate in our online forum, view and download our patient information leaflets and much more.

To join A-A and our new Medical Professionals Area click here

If you are already a paid member of A-A, email for a password and username

International Summit on Syncope: State of the Art 2007

The International Summit on Syncope will bring together international experts in the field of syncope to discuss this challenging medical condition...Read More

ICD and Arrhythmia Patient Support Groups

If you run, intend to start, attend or know of an ICD or other arrhythmia Patient Support Group in your area, please e-mail the contact details to info@arrhythmiaalliance.org.uk  The Arrhythmia Alliance, in conjunction with the DoH NHRMD Taskforce, is working on producing guidelines to establish Information & Support Groups, and to provide training and material to healthcare professionals and trained volunteers on how to run a successful group.  If you or anyone you know are interested in receiving further information please contact us.

Drug-Induced Arrhythmia Risk Evaluation (DARE)

The DARE Study aims to recruit patients and controls (prospectively in England) to examine this phenomenon and evaluate the importance of predisposing epidemiological and genetic factors.

Read how you can help   Read the DARE Flyer

Heart Rhythm Congress 2007 is to take place between the 29th—31st October 2007. For more information and to register your interest visit: www.heartrhythm.org.uk

Heart Rhythm Congress 2007

First ICD Implant in the Channel Islands

This surgical first in Jersey has saved the life of  75 year-old Captain Frank Lawrence allowing him to continue his life long passion of long-distance running. Dr Andrew Mitchell performed the 90 minute operation, stopping Mr Lawrence’s heart and implanting the defibrillator. It is one of many new procedures he is hoping to bring to Jersey in order to save the patients having to travel to England.
Watch the news coverage     BBC website   Read the newspaper coverage(page 1, page 2)

Fundraising for Arrhythmia Alliance

Arrhythmia Alliance is achieving its aims and objectives but we need your help to continue increasing awareness and promoting better understanding, diagnosis and quality of life for individuals with cardiac arrhythmia. We require funds to continue to grow and to provide services to meet the challenges ahead. We need your help. Please click here for ideas on how to raise funds for A-A

 

STARS-Shine a Light on Education

The education website material is currently undergoing approval by the medical professionals, but will be up and running in the next two months. We must once again make a plea for volunteer action...Read More

Case Studies Required

We need more cases relaying simple accounts of your experiences with arrhythmias for our website. Read My Ablation Experience for an example.

Press Clippings

· Effective Health Information—The Key IssuesWednesday 28th February 2007, Novotel Convention Centre, London. The second annual patient information forum conference provides an important opportunity to learn from the many different ways that organisations and individuals are succeeding in providing effective information for patients, their carers and the public

· Rhythm Congress: Arrythmias and Heart Failure15th-17th June 2007, Cannes, France
Visit the website to read the preliminary program. Recent progress on implantable devices, algorithms and ablation procedures, have modified the use of our therapeutic arsenal so it has become essential for us to gather all practitioners in order to share and compare our medical strategies.

· 34th International Congress on Electrophysiology, and 48th Symposium on Vectorcardiography27th—30th June 2007, Istanbul

· Anatomy for Electrophysiologists - 2nd-3rd July 2007, Royal Brompton & Harefield. This 2-day course aims to provide the foundation for understanding the anatomy of the heart and spatial relationships of cardiac structures as viewed by Cardiac Electrophysiologists

· Medical Futures Cardiovascular Innovation Awards—These  Awards are run on a not-for-profit basis and help to identify, promote and reward innovators in  Cardiology and Vascular surgery.

· 34th International Congress on Electrocardiology, and 48th International Symposium on Vectorcardiography
27th-30th June 2007, Istanbul

· Board of the British Society of Cardiovascular Magnetic Resonance (BSCMR) 2nd Annual Meeting
7th March 2007, London

· British Society of Medical Managers January-May 2007, various parts of the UK

· Europrevent 2007—Madrid, Spain. 19th-21st April 2007— EuroPrevent is an international platform bringing together cardiologists, scientists and other health workers with a specific interest in the fields of Basic Science, Cardiac Rehabilitation, Epidemiology & Public Health.

· ESC Congress 20071st-5th September 2007. Now accepting Abstract submissions here

· SADS UK—Patient Support Seminar –21st April 2007
This Seminar offers the opportunity to meet with others who are living with similar cardiac conditions or who have been bereaved, to learn more about cardiac arrhythmia and to share thoughts and feelings.  Click here for Registration Form

· Venice Arrhythmia 2007— 7th-10th October 2007, Venice, Italy.

· UKCRN course availability listing A complete list of UKCRN’s courses for 2007 can be found here.

· Diploma Level Module: Atrial Fibrillation