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Arrhythmia Alliance E-Bulletin |
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“Promoting better understanding, diagnosis, treatment and quality of life for individuals with cardiac arrhythmia” |
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April 2007 |
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Arrhythmia Awareness Week 2007 (AAAW07) 11th-17th June 2007 |
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April 2007 |
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Forthcoming Events |
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To remove your name from our mailing list, please click here. |
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We are receiving a great deal of interest and support-but we need more! Last year saw 165 events taking place around the UK and feedback showed the need for greater awareness still! Please support us during the week. Click here to find out how you can help |
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Welcome to our e-bulletin where you can read about the latest research into heart rhythm disorders, useful heart information sources, dates for your diary and more. |
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If you have any links, suggestions for stories to cover in next month’s e-bulletin, or know of any forthcoming events, please email webmaster@arrhythmiaalliance.org.uk |
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Registered Charity No. 1107496 |
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Tel: 01789 450787 Email: info@arrhythmiaalliance.org.uk Address: PO BOX 3697, Stratford-Upon-Avon, Warwickshire, CV37 8YL |
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Contact us |
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Medical News |
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Arrhythmia in the News |
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Volunteers— we need your skills! |
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The education project is fast progressing but to produce our new resources and make it a success, more volunteers are needed. Good at talking..? Confident..? Why not become an in-school presenter and educate teachers, staff & carers on syncope and arrhythmias?
Spread the word! 'Education, Education, Education' - it's the only way to ensure that young people with syncope are fully supported in their learning environment. For more information, or to offer your skills, please contact Laura Nelson at education@stars.org.uk or on 01789 451823. |
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The Medical Advisory Committee of STARS has prepared “The Blackouts Checklist” to aid patients and doctors to reach the correct diagnosis. If someone loses consciousness for a few seconds or minutes, they are often said to have had a blackout. Many people, including doctors, assume that blackouts are due to epilepsy, but much more commonly they are due to syncope. This checklist will be useful to complete prior to visiting a doctor. Download checklist (requires adobe reader) |
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The Blackouts Checklist |
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Calling All Medical Professionals |
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Do you work with Arrhythmia Patients? Have you joined our secure area yet? This dedicated new service for all professionals working with arrhythmia patients is proving very popular and we shall continue to improve content and provide you with helpful information and advice about arrhythmias and everything connected with the subject. Currently this information includes Care Pathways, Job Descriptions, Guidelines on How to Set Up Rapid Access Clinics, Business Case Templates, Patient Information Literature (in pdf), presentations from Meetings and our Congress, a Members' Forum for exchanging information, and much more… To join visit http://www.arrhythmiaalliance.org.uk/html/medical_area.html |
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‘Where’s the AED?’ |
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"It is now seven years since Professor Roger Boyle was appointed as National Clinical Director for Heart Disease to prepare a National Service Framework for the assessment, treatment and rehabilitation of heart patients.” |
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Roger Boyle celebrates 7 years as National Clinical Director for Heart Disease |
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Press Clippings |
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REGISTER FOR THE CONGRESS ONLINE NOW Features at the Congress this year will include Devices & Intervention courses, Live cases, HRUK courses and many more. The draft agenda will be displayed at www.heartrhythm.org.uk by the end of April. SPONSORSHIP AVAILABLE (contact Laura) |
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Heart Rhythm Congress 2007 - 29th-31st October 2007 |
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Sudden Cardiac Arrest is the UK's number one killer, claiming approx. 100,000 victims each year. It can strike anyone, anywhere, at anytime and defibrillation is the only treatment. Arrhythmia Alliance is currently planning a campaign to raise awareness of Sudden Cardiac Arrest and to promote the placement and use of AEDs (Automated External Defibrillators) in public places. We would love to hear from anyone who has any direct or indirect experience of Sudden Cardiac Arrest, and who has an interest in supporting our campaign. Please contact Laura Nelson at aed@arrhythmiaalliance.org.uk for more information or to register your support. We shall be setting up a dedicated web page shortly which will provide further details of the campaign. |
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During the awareness week, we are promoting 13th June as our ‘World Heart Rhythm Awareness Day’. A number of organizations worldwide will join forces to highlight Heart Rhythm awareness promoting better understanding and speedy referral to specialists and improving quality of life for those living with Cardiac Arrhythmia. For more details click here |
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World Heart Rhythm |
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Arrhythmia Alliance Patient Booklets |
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Arrhythmia Alliance has a range of booklets which are all patient friendly and have been accredited by the Executive Committee and endorsed by the Department of Health. They can be used for your own private reading or maybe take to your doctor and discuss your concerns further with him/her The latest booklet is the CRT Pacemaker which has just been printed. To follow is a revised Catheter Ablation Book, Exercising with your ICD and Drug treatment. All the booklets can be downloaded from our site or alternatively you can order directly from us. Or maybe you need more than one please then use the order form simply print off and fill in and pop it in the post. We are always happy to take any questions regarding our booklets or any suggestions you may have. |
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Blair Hails NHS Treatment Success |
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The Prime Ministrer recently met some of the frontline NHS staff who have helped prevent more than 100,000 deaths from coronary heart disease since 1997, as well as some of the patients whose lives have been saved. He said that the Government was well on track to meeting two years early its 2010 target of ensuring 40% of coronary heart disease sufferers do not die prematurely |
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New skills on board |
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Arrhythmia Alliance welcomes new Director of Development, Doug Henderson, formerly of The Jennifer Trust for Spinal Muscular Atrophy (JFTSMA), joined Arrhythmia Alliance as the new Director of Development on 19 March. |
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Fundraising |
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We desperately need your help to kick start the new fundraising year and to help us reach our target. We aim to raise Ł80,000 through membership support, voluntary sponsorship and events, for example: Jumping out of a plane –– Skydive Cycling one of the best routes in Europe –– London to Paris Cycle Ride Trekking through the Lares region of Peru –– Peru Trek The above are just a few of the many events that you could do to help. No matter how big or small, daring or cautious, with your help, we can achieve our targets and increase awareness and support for all those affected by cardiac arrhythmias. Why not try - Fire walking, abseiling, zorbing or holding a coffee morning, a table in a supermarket, a car boot sale, or anything that takes your fancy. An enormous thank you to everyone who has already been raising funds and awareness throughout the last year for Arrhythmia Alliance, without your support we would not have the impact we are having on the general public, the government and international arenas! Look out for this years’ new and exciting campaigns, being launched soon! |
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Arrhythmia Management Module - Level 4 |
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This award will enable health care professionals to achieve advanced knowledge and skills to care holistically and competently for patients with arrhythmias and those at risk of developing arrhythmias. The award will incorporate all aspects of arrhythmia patient assessment, investigations, holistic care and management. The award will be delivered over 9 days held in two blocks one 5 day block followed by one 3 day block five months later which will allow time for consolidation of knowledge and application to practice. These blocks will include the student developing patient assessment, arrhythmia management, electrophysiology management, interventions and investigations. |
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Write to Your MP! |
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As a constituent, your voice is invaluable to MPs. As a supporter of Arrhythmia Alliance, your writing skills are invaluable to raising awareness. You can help The Alliance this AAAW, by writing to your local MP; not only to muster their support and raise awareness, but also to get some answers! Read More |
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Heart Pacemakers and Defibrillators: Are they reaching all who need them? |
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Heart rhythm disorders are a major cause of sudden death and disability, but for many sufferers a modern pacemaker or defibrillator can save life and reduce symptoms when implanted by a simple operation.
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Regional Meetings 2007 |
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All 6 Regional Meetings went exceptionally well with up to 100 delegates present at each one. All evaluation results are available on our website. Presentations for each meeting can be found in the Medical Professionals Area of our website. Wales Regional Meeting 2007 - will take place on Tuesday 18th September 2007 at The All Nations Centre in Cardiff. Scotland Regional Meeting 2007 - dates will be announced in due course |
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· A National Campaign for Cardiac Rehabilitation—Wednesday 25th April 2007, York Racecourse · Rhythm Congress: Arrhythmias and Heart Failure—15th-17th June 2007, Cannes, France · 34th International Congress on Electrophysiology, and 48th Symposium on Vectorcardiography—27th—30th June 2007, Istanbul · Anatomy for Electrophysiologists - 2nd-3rd July 2007, Royal Brompton & Harefield. This 2-day course aims to provide the foundation for understanding the anatomy of the heart and spatial relationships of cardiac structures as viewed by Cardiac Electrophysiologists · Medical Futures Cardiovascular Innovation Awards—These Awards are run on a not-for-profit basis and help to identify, promote and reward innovators in Cardiology and Vascular surgery. · Ventricular Arrhythmia & Sudden Death Symposium · British Society of Medical Managers January-May 2007, various parts of the UK · Europrevent 2007—Madrid, Spain. 19th-21st April 2007— EuroPrevent is an international platform bringing together cardiologists, scientists and other health workers with a specific interest in the fields of Basic Science, Cardiac Rehabilitation, Epidemiology & Public Health. · ESC Congress 2007—1st-5th September 2007. Now accepting Abstract submissions here · SADS UK—Patient Support Seminar –21st April 2007 · Venice Arrhythmia 2007— 7th-10th October 2007, Venice, Italy. · UKCRN course availability listing A complete list of UKCRN’s courses for 2007 can be found here. |